The ethics of research using existing data - analysing without consent
Current difficulties of data usage stem from access to data being much greater than consent to use it for research purposes. In social science, previously collected or freely available data have suffered from a lack of ethical scrutiny processes. Meanwhile official data from health and government sources have had legal processes about disclosure of identity and restrictions to specific types of use. To follow up the recent RSS sponsored NCRM event on creating research data policy we will discuss the evolution of these processes and the role for the RSS.
Active participation will be required so please bring questions and concerns.
Madeleine Murtagh (Newcastle)
'Better governance, better access: practising responsible data sharing'
Peter Elias (Warwick)
'Consent to process personal data and its impact on social research'
Mary Tully (Manchester)
'Use of health data in the dock – what do citizens’ juries decide'
Simon Whitworth (UKSA)
National Statistician’s Data Ethics Advisory Committee: Providing assurance that the use of data for research and statistical purposes is ethical and for the public good
Tony Calland (HRA)
'The role and functions of CAG'
The venue is (building number 35 on the interactive map
Lunch will be provided
Organiser Name Tom King
Organising Group(s) RSS Emerging Applications and Social Statistics Sections with the National Centre for Research Methods