Lack of clinical trial transparency 'unacceptable', say MPs

Written by Web News Editor on . Posted in News

The chair of the UK government's Science and Technology Committee has described the current lack of transparency of many clinical trials as 'unacceptable' and has called for the government to do more to tackle the problem.

Andrew Miller MP made the comments as the Committee published a new report on Clinical Trials. The report calls for all trials receiving public funding to have their results published in a scientific journal, and ensure that historic trials are registered and published.

The report supports calls currently being made by the AllTrials campaign, which the RSS has leant its support to. While the Society did not submit evidence it is listed as one of the bodies that subscribed to the AllTrials petition as part of Sense About Science’s written evidence.

'Many of the trials taking place today are unregistered and unpublished, meaning that the information that they generate remains invisible to both the scientific community and the public,' said Committee chair Andrew Miller MP. 'This is unacceptable, undermining public trust, slowing the pace of medical advancement and potentially putting patients at risk.'

The Committee also asked the Government to take steps to facilitate greater sharing of the raw data generated during a trial, so long as it is done in a 'responsible and controlled way'.

The Report also drew attention to the recent fall in the number of trials taking place in the UK, and noted that researchers can struggle to get trials up and running due to the need for multiple governance approvals from participating NHS organisations. It cited a lack of public awareness as a key issue.

Andrew Miller stated: 'These problems are not insurmountable and we are confident that the Government is aware of the need to resolve them. But it is now time for the Government to translate its words into effective action.'

Health & Medicine Clinical trials AllTrials

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